preparing to go home

Getting ready to go home after a Stem Cell Transplant

Leaving hospital after your child’s stem cell transplant is a major step. It means they are recovering, which is something to celebrate. But it is also completely normal to feel a mix of excitement and anxiety as you prepare to take them out of the hospital environment and back into the world.

The move from red isolation to reduced (purple) isolation is the first step. This change means your child can start to go outside for walks. These outings can begin with short trips and build up gradually. Getting fresh air and a change of scenery is really helpful, but if you are unsure, the Ward 3 team is always there to support you.

Going home

We've heard of some amazing stories of families preparing games rooms for children who are still in need of isolating at home when discharged.

When the time comes to return home, it’s important to go gently. You and your child have been through so much. Give yourselves time to rest, re-establish routines, and find your rhythm again. Keep visitors to a minimum at first, and accept offers of help. If you’re struggling emotionally, or your child’s behaviour has changed, please let Ward 3 know! It’s normal to need support, and help is always available.

Learning to care at home

As part of the discharge process, you’ll be taught how to care for your child’s central line and, if needed, naso-gastric tube. You’ll also be trained in giving medications. These are important responsibilities, but you won’t be expected to do them alone we’ll practise them with you until you feel confident.

If you haven’t been staying with your child in hospital, it’s helpful to stay overnight for a few days before going home. This gives you the chance to adjust, ask questions, and build confidence with the daily routine.

What you will need to do as a parent

You will be responsible for infection control and day-to-day care at home. This includes:

• Practicing good hand hygiene. Wash your hands thoroughly, remove jewellery and cover any cuts. Use alcohol rub on clean hands and follow the same process before and after any care tasks.

• Changing your child’s central line dressing once a week, or sooner if it becomes wet or dirty. You will be shown exactly how to do this and given everything you need.

• Keeping your child safe from infection by following specific guidance while they remain vulnerable.

This includes:

• Wearing masks when in hospital or public areas, or using a buggy rain cover

• Avoiding crowded places, public transport, and contact with animals

• Not visiting others’ homes or wards

• Keeping your child away from sand, seawater, and areas that might be contaminated

• Avoiding takeaways or restrictedfoods

• Ensuring your car is clean and tidy for travel

• Making sure the central line is safely secured under clothes when doing up the seatbelt

At this stage, life will still need to be carefully managed. Try to avoid unnecessary outings and limit visitors. Use sun cream to protect sensitive skin and bring spare supplies in case of sickness.

If you ever feel unsure, ask the ward for advice, or your new healthcare professional at your home town. You are not expected to know everything or manage alone. With the right support, you will find your way through this next chapter.